The Dementia Champions Group (DCG) consists of 15 members with mild to moderate dementia, carers and ex carers, and also welcome new members with mild cognitive impairment. They formed in January 2013 to help Salford City Council and the Clinical Commissioning Group improve the delivery of dementia services and support in Salford for those with dementia and their carers. In line with the Prime Ministers Challenge.
During April 2017 – March 2018 they have given feedback to services to CCG partners Salford Royal, Memory Assessment Treatment Service, Greater Manchester Mental Health, and service providers in the community about what was good and what needs improving for people with dementia and their carers.
The group have produced a document to help people affected by dementia, carers and staff to easily find what support and advice they need at each stage of someone’s journey with dementia. Click here to download the document.
In 2018, they have welcomed people with mild cognitive impairment (MCI) to discuss preventative measures and raise awareness about MCI and to work with MATS to ensure that these people do not fall through the gaps in receiving support.
The DCG have also been pivotal to the development and ongoing support of Dementia Action Alliance working to make Salford a dementia friendly city.
They have been supporting each stage of the development of
- The Salford Way Ap with Salford CVS which will advertise all dementia friendly businesses in Salford who have joined the DAA. They have been involved in a film to promote the AP to gain further funding for development.
- To support the mapping and development with Salford CVS raising awareness of dementia within the BAME communities
- Mystery shopping of businesses signed up to the DAA
- Interview on Salford city radio to raise awareness of how the group and the DAA are working to make Salford a dementia friendly city
The group have supported the consultations at the Citizen Panel events and various other CCG / SCC consultations & campaigns and raised awareness around
- The development of the new Safeguarding Strategy
- The development of the new Carers Strategy
- The development of the new Mental Health For All Ages Strategy
- The Suicide Prevention Strategy
- The Big Conversation
- The flu jab
- Winter Warmth
Supporting SRFT and university research for the Guardian Angel project funded by the CCG to work in partnership with Salix Homes to equip 200 homes in Salford with sensors for frail elderly to look at how ill health may be prevented or detected earlier.
Supporting the activities organised by service providers in Dementia Awareness Week.
Work they decided to undertake themselves in 2017:
- Raising awareness in their GPs about the “Power in our hands” pack
- Joining their GP patient panels
- Supporting the making and distribution of twiddlemitts in partnership with CCG staff.
- Visiting a new residential / nursing home in Blackburn to give feedback to the commissioner.
- Linking in with Salford University to support the research around young onset dementia.
More than 150 people came together for a celebratory event to mark Dementia Action Week. The event, which was organised by Salford CCG and Salford City Council, took place on Friday, May 24, at the Lighthouse in Eccles.
The event celebrated the hard work being done by Dementia Friends Champions across the city including those in the GP practices and promoted the importance of
- how healthy living can help to reduce the risk of vascular dementia;
- the innovative intergenerational work that is happening in Salford to raise awareness about dementia to school children, their families and the community;
- how to get the right information at the right time;
- the wonderful support services in Salford for people living with dementia and their carers;
- networking opportunities with a wide range of people from across Salford;
- the importance to have fun.
The event connected guests with dementia services, support and advice. This was done through speakers, presentations & stories from service users. Twenty plus organisation information stands attended and there was some very enthusiastic singing and dancing with a conga led by the fabulous Dancing with Dementia Group.
People gave their views on how dementia services and support has improved in Salford, and what still needs to be improved. These views will be collated and will influence the Commissioners of those services and a report will be published on the CCG web page.
If you have any queries about the Dementia Champions Group please contact Caroline Allport by emailing firstname.lastname@example.org
- In the annual awards of the Association of Healthcare Communications and Marketing (AHCM), Salford CCG were 'highly commended' for the Best Partnership Award for Embracing the Dementia Challenge an event co-produced in 2016 with the Salford Dementia Champions Group to celebrate those living with dementia.
- In May 2017 the CCG had their first awards evening and the group and their Development Worker won their category of “putting the patient first”.
- They were also invited by the Ceremonial Mayor for afternoon tea and presented with the Salford Citizens Award for their work in raising awareness supporting Salford to become a dementia friendly city.
- In December they won CVS Heart of Salford “Volunteering Team of the Year” out of many team who were nominated.
The Salford Dementia Champions Group are looking to recruit new members to ensure they are able to continue to support the CCG, partnering organisations and service providers in helping Salford become a dementia friendly city.
The group are working with the GP practices at the moment, their Patient Participation Panels (PPGs) and their practice Dementia Champion to support all practices in Salford to become dementia friendly, and able to offer Dementia Friends training to staff and patients.
The group are looking for people who have early onset dementia and their family carers maybe interested in this type of volunteering and who may want to be involved helping to shape the dementia health and social care services in Salford in line with the Prime Ministers Challenge. This includes supporting the development of the Salford Dementia Action Alliance, which is now the largest in the UK
Work for 2017/18
- To support GP’s to deliver the Salford Dementia Standard working with the practice Dementia Champion and the patient panels.
- To support the delivery of dementia awareness sessions throughout the city supporting the DAA in making Salford a dementia friendly city.
- Support the delivery of events during Dementia Action Week in May
- To continue to support the research around the Guardian Angel project
- To continue supporting services and people who have MCI
- Continue to consult with the GGC and partners
- Supporting the consultation of organisations applying for funding for dementia projects through CCG innovation monies.
- To support the work of Dementia United and share best practice with others in the GM areas.
- Supporting the CCG Citizen Panel events
- Link in with the Young onset group “Chapel Champions”.
- Continue to link in with the Dementia Carers Group.
- Link in with the research programmes at the Dementia Hub at Salford University.
People with dementia or memory problems and their carers should expect the highest level of help and support. This will enable them to have the best opportunities of living well with dementia in Salford.
We will achieve this by everyone working together in whatever way we can, to make a meaningful contribution to the lives of our neighbours, friends and family to help them live well with dementia.
People of Salford with dementia or memory problems and their carer's should expect:
- Help, advice and guidance from their GP
- Support from fully trained professionals for both the person with dementia and their carers.
- An early diagnosis of dementia
- To be involved in the writing of their support plan
- Access to information about the illness to be able to make informed choices and plan ahead.
- Access to the right level of help, support and care to live at home.
- A knowledgeable, sensitive, "dementia key worker" to give support throughout the journey.
- Supportive communities and neighbourhoods.
- High quality care and advice if they need to go into hospital.
- High qulity residential care that suits the individual and carers.
- End of life information while they are able to make decisions.
- Support for their family after death.